Dear Bianca’s Kids,
Last year my daughter Avery was diagnosed with Systemic Juvenile Idiopathic Arthritis (SJIA) complicated by Macrophage Activation Syndrome (MAS), a mysterious and rare inflammatory condition, at two years old. Little is known about MAS except that it can kill within hours and that it tends to strike about 10 percent of children who have SJIA.
After spending 36 days at John Hopkins Children’s Hospital in St. Pete and two months of chemo we thought the worse was over but after a flare up we had to transfer Avery to the Cincinnati Children’s Hospital where she was treated for 4 months. With that said, Avery never lost her smile or fight and we were able to come back home to Florida.
My wish for my daughter is a chance to be active and also exercise which due to the heat is not easy for her but with the SoftZone 4- tunnel maze and climber she would be able to safely be active and have fun as well. My little adventurer loves indoor gym sets to climb and cause trouble so any help would be greatly appreciated.